Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
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WELCOME to Bridging the Gap of EA/TEF. Collectively, we are a group of parents with a child who was born with EA/TEF. This resource is being assembled with insight and assistance from other families effected by EA/TEF. We have come across many stumbling blocks in the lack of resources available to us to explain what EA/TEF is when we are told of such a diagnosis, as well as the potential long term effects that our children will have from being born with EA/TEF. OUR GOAL: To Bridge the Gap of EA/TEF and assist in providing a single source resource guide and face-to-face support system for families to refer to when told their child has EA/TEF.
Note that ALL services and resources are offered on a volunteer basis.
**Note we are also located on Facebook. Click our group picture above.
We are excited to announce that we are working in collaboration with the Esophageal Atresia Treatment Program at CH Boston, Dr. Russell Jenning's the Director of the EA Treatment program, and Dr. Foker, the inventor of the Foker technique to assist in the development of BTG. With invaluable insight from these sources, our hope is to:
Develop and implement the following core areas of BTG:
To Learn more about these areas, please visit the services tab of this website.
Copyright 2010 Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network. All rights reserved.
Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
webmaste