Bridging the Gap of EA/TEF:
A Family to Family Support & Resource Network
Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
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Facts about EA/TEF
Copyright 2010 Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network. All rights reserved.
EA/TEF in long form is called Esophageal Atresia and Tracheoesophageal Fistula. Below are some facts about EA/TEF which were compiled from the following sources:
1. Children's Hospital Boston: Sheet regarding Esophageal Atresia and Tracheoesophageal Fistula
ea/tef is an abnormal or non-existent connection between the esophagus and the stomach
For some infants connection of the esophagus can be done fairly immediately, while for others, their will be the need to wait for the blind pouch to grow in order to be connected.About 1 in every 3,000 to 5,000 infants is born with one or both of these conditions in the Us each year. (1)
Worldwide statistics: In much of the undeveloped world it is unfortunately not a survivable lesion, and in other parts the treatment is often avoided or delayed due to weak and strained medical systems. It is suspected the occurrence is roughly 1/4000 live births since there has not yet been any genetic or environmental cause found.In most cases, ea/tef (tof/oa) is not pre-natally diagnosed
Some ways an OB/GYN may pick up the signs of possible EA:
- no or small stomach/no stomach bubble
- high levels of amniotic fluid
- linked to vessel cords anomalies (2 vessel cords)
Up to one-half of all babies with TE fistula or esophageal atresia (TOF) have another birth defect (1)
- trisomy 13, 18, or 21
- other digestive tract problems (such as diaphragmatic hernia, duodenal atresia, or imperforate anus)
- heart problems (such as ventricular septal defect, tetralogy of Fallot, or patent ductus arteriosus)
- kidney and urinary tract problems (such as horseshoe or polycystic kidney, absent kidney, or hypospadias)
- muscular or skeletal problems
- VACTERL syndrome (which involves Vertebral, Anal, Cardiac, TE fistula, Renal, and Limb abnormalities)
About one-half of children who had esophageal atresia (TOF)repaired will have problems with GERD (1)
Almost All Ea/tef (TOF) infants are born with some form of Tracheomalcia.
Copyright 2010 Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network. All rights reserved.
Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
webmaste
