Bridging the Gap of EA/TEF

Support Group Mission Statement

Bridging the GAP of EA/TEF (BTG) Support Group is devoted to fostering an ongoing relationship between family members and medical professionals. Esophageal Atresia/TreachoEsophageal Fistula is a rare birth defect in which many families are not prenatally diagnosed and even more so few physicians and medical professionals have knowledge of this birth defect. Because of the rarity and varying severity of this birth defect family members feel isolated and confused about how to deal with the condition. Likewise, some medical professionals, have difficulty in dealing with the diagnosis and treatments of this rare birth defect.

Infants and their families affected by EA/TEF need a support system to help them deal with the many issues surrounding the diagnosis of EA/TEF and other birth defects which may have formed.

Physicians and the medical community also need support in dealing with the diagnosis and treatment of EA/TEF. Many physicians and medical professionals will see very few if any patients with this birth defect. Because of this, EA/TEF is not a major part of medical school training. Therefore, physicians and medical professionals, as well, need support with these patients if they suspect a diagnosis and potentially must begin treatment.

The goal of the BTG Support Group is to gather information from each group of people involved (Family Members, Physicians, OB/GYNs, medical facilities) and disseminate that information to all. The BTG Support Group is an information center and a "Helping Hand" for affected people. It is only through the efforts of Family members and Physicians/Medical Professionals that BTG can reach many more people in need.

By sharing information, resources, and support the BTG Support Group will create a "Circle of Hope" for those affected by EA/TEF.