Bridging the Gap of EA/TEF:
A Family to Family Support & Resource Network
Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
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Resources
In this section, you will find universal links which will help to explain Esophageal Atresia and Tracheoesophageal Fistula (EA/TEF), as well as the VATER/VACTERL syndrome that may be associated with EA/TEF.
Not all EA/TEF infants are born with signs of the VATER/VACTERL, but it is important to ensure your hospital has testing done on your infant to rule-out any other possible birth defects that may have formed but were not detected prenatally. It is also, important to be aware that almost all infants born with EA/TEF suffer from some form of tracheomalacia.
We searched for and developed resources to help you navigate through the complexities of EA/TEF.
Association of hole in the wall camps
The Association of Hole in the Wall Camps is an international family of camps that provides life-changing experiences to children with serious medical conditions, free of charge. Our goal is to extend these experiences to as many children as possible around the world.Complex Child E Magazine
Very good internet resource that touches based on everyting from GI/Nutrition to Reflux and Respiratory issues.
Copyright 2010 Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network. All rights reserved.
Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
webmaste
