Bridging the Gap of EA/TEF:
A Family to Family Support & Resource Network
Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
webmaste
Medical Facilities for EA/TEF
Finding out that your child has EA/TEF can be extremely hard. Initially, you feel as if you are the only one going this journey alone. Afterall, it is not like EA/TEF is a widely known and/or publicized birth defect.
If you have just had an initial diagnosis or failed attempt at repair, or if you are not satisifed with the potential repair prognosis, REMEMBER, it is within your right to ask for a second opinion. In most cases, we think that just because our infant is in the hospital that a second opinion is not possible. Rest assured it is.
If you wish to seek a second opinion, simply identify the medcial facility you wish to obtain the second opnion from. Contact them and discuss your child's situation. After speaking with them, if you feel confident in your discussion, ask your current medical team to email all medical xrays and history to the facility you wish to have provide the second opnion.
This page contains links to medical facilities, pediatricians, doctors, GI specialist, etc that fellow EA/TEF parents have submitted, in which they have had a good experience with.
By posting these facilities, it is not representative of BTG that these facilities and/or doctors are the best for your child, but is representative of other EA families who have utilized their services with favorable outcomes for their child.
california:
Lucile Salter Packard Children's Hospital at Stanford UniversityLPCH
725 Welch Road | Palo Alto, California 94304 | (650) 497-8000 begin_of_the_skype_highlighting (650) 497-8000 end_of_the_skype_highlighting begin_of_the_skype_highlighting (650) 497-8000 end_of_the_skype_highlightingflorida:
Joe Dimaggio Children's hospital
Julie A. Long, M.D.
South Florida Pediatric Surgeons, P.A.Hollywood office
954-981-0072Memorial Medical Office Centre
1150 North 35th Avenue Suite 555
Hollywood, FL 33021Professional Arts Centre
300 Northwest 70th Avenue Suite 202
Plantation, FL 33317Memorial West Medical Office Building
601 North Flamingo Road Suite 260
Pembroke Pines, FL 33028georgia
Atlanta:
Pediatric, adolescent, surgical associates
1975 Century Boulevard North East Suite 6
Atlanta, GA, 30345
Phone Number: (404) 982-9938 begin_of_the_skype_highlighting (404) 982-9938 end_of_the_skype_highlighting begin_of_the_skype_highlighting (404) 982-9938 end_of_the_skype_highlightingJessica Martin at the Pediatrics Rehab center at Scottish Rite (For OT)
Andrew J. Kirsch, M.D., FAAP, FACS Urology
404-785-7100 begin_of_the_skype_highlighting 404-785-7100 end_of_the_skype_highlighting begin_of_the_skype_highlighting 404-785-7100 end_of_the_skype_highlightingMeridian Mark Pediatrics
5445 Meridian Mark Road,
Suite 420
Atlanta, Georgia 30342
404-252-5206 begin_of_the_skype_highlighting 404-252-5206 end_of_the_skype_highlighting begin_of_the_skype_highlighting 404-252-5206 end_of_the_skype_highlightingMASSACHUSETTS:
Esophageal Atresia Treatment Program at Children's Hospital Boston
Is the world's only center offering the most effective surgical treatment of esophageal atresia (EA) and the commonly associated condition tracheoesophageal fistula (TEF). This treatment is known as the Foker technique, and relies on the innate ability of truncated esophageal segments to grow under sustained tension.
Specialists within the EAT Program also care for children with:
- lye strictures - the chemical burn (and subsequent scarring) of the esophagus, caused by the ingestion of sodium hydroxide or potassion hydroxide
- hiatal hernias - a condition in which the upper part of the stomach bulges through an opening in the diaphragm
Minnesota:
OHIO
Cincinnati Children's Hospital
3333 Burnet Avenue, Cincinnati, Ohio 45229-3039
513-636-4200 | 1-800-344-2462 | TTY: 513-636-4900rhode island:
texas:
Steve Megison, MD
Pediatric Surgeon
214-456-6040 begin_of_the_skype_highlighting 214-456-6040 end_of_the_skype_highlightingsteve.megison@childrens.com
Children's Medical Center
1935 Medical District Drive
Dallas, TX 75235
Copyright 2010 Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network. All rights reserved.
Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
webmaste
