Bridging the Gap of EA/TEF:
A Family to Family Support & Resource Network
Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
webmaste
EA/TEF Support Grps
Links specific to EA/TEF Suppport Groups on-line:
bRIDGING THE GAP OF EA/TEF
We are also located on facebook at:
Bridging the Gap of EA/TEF
And have created a closed group as well for those who feel more comfortable posting in a closed group:
US Bridging the Gap closed Group
AFAO French Support group
AFAO is an association to bring together parents of children born with esophageal atresia and adults, old atretic so they can share information and experiences.
In this context, this website aims to:
Promote contacts between families affected by atresia of the esophagus through a forum and a section on "testimonies".
Provide information on esophageal atresia families but also the entire medical staff (care assistants, nurses, medical students, kinésithérapeuthes). These information pages are written to be read and understood. The scientific council of the association helps to documentary research, validate the site's articles and participates actively in the drafting of certain sections. A section on "research work" presents recent studies on esophageal atresia by researchers (theses, publications and posters).
Help families better navigate the health care industry and enhance (not replace) the contacts between families and medical staff. In this sense, no medical advice will be given to families.
This site receives no financial support and is independent of any commercial enterprise. Some pages may include commercial products and commercial enterprises. This is always the result of a deliberate choice to help families better organize their daily lives and offer them solutions that improve health or quality of life of their child.
For more information on association activities, write us or contact our local representatives.EA/TEF Family Support Connection
NOTE: This support group is located on Facebook. The EA/TEF Family Support Connection was formed by and for families of children born with (Esophageal Atresia and Tracheoesophageal Fistula) EA/TEF and the medical professionals who treat them. Be sure to visit http://www.eatef.org/forums/ as well.KEKS e.v. german support
KEKS is a patient and self-help organization for children and adults with diseased esophagus, how to live with a child with this problem, with a KEKS-child or who live as adults, even with this problem. Each of our affected members is unique and all are admirable fighters - as well as your child or yourself, many of us have been great KEKS-children and they show that there is a future with a quality of life, from that of a healthy almost no different.
By KEKS you have the opportunity to get advice from staff and network with other concerned parents and stakeholders.Kids born with Tracheal Esophageal Fistula (TEF) & Esophageal Atresia (EA)
This is a group for all the parents who have had children born with Tracheal Esophageal Fistula (TEF) and Esophageal Atresia (EA). Also anyone with children who suffer from Tracheal Malacia (Some of the rings that are normally present in the trachea are missing making the airway collapse easier because the trachia is soft or floppy).Oesophageal Atresia Research Auxiliary - Austrailian based support
What does O.A.R.A do?
Our primary aim is to raise funds to ensure future research into oesophageal atresia. Since our formation in 1981 we have funded a number of major research projects. In addition, due to our members having such an intimate and heartfelt involvement, we are in a unique position to offer comfort, advice and assistance to those families referred by hospital staff, who find themselves suddenly caught up in the drama of oesophageal atresia and related conditions.
OARA also funds the Oesophageal Atresia Nurses at the Royal Children's Hospital. These nurses provide information and support to families with children with oesophageal atresia and /or tracheo-oesophageal fistula.
TOFS: UK based support Group
TOFS is a registered, UK-based charity dedicated to providing emotional support to families of children born with Tracheo-Oesophageal Fistula, Oesophageal Atresia and associated conditions.
Copyright 2010 Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network. All rights reserved.
Bridging the Gap of EA/TEF: A Family to Family Support & Resource Network
United States
webmaste
